New/Experimental treatments for Spina Bifida?

I'm looking for new/experimental treatments for Spina Bifida patients. My son, age 3, is a level T12, and is having problems with muscle tone especially. We had to wait 4 weeks for new hkafo's, and in the mean time the muscle at the top of the right leg & hip has gone into a tight spasm, making it impossible for him to get into the brace.

I'm desperate to keep what he has without surgery.

I once read that there is a clinic in Hungary (I think) which does alterntative treatments for neuro/ortho patients with good results. I can't remember the name though. :(

His father lives in the U.K. right now, but is also an Italian citizen. So any of the Western European countries or USA would be good for us.

Please e-mail me at [email protected] if you know of anything.

Thanks!
Anna