Friedreich’s Ataxia Research. Please Help!

[Raffles Design]

I am a master of design student at Raffles College of Design and Commerce in Australia. Our group currently researching for a practical project designing for the society. We are focusing to design to improve physical limitations for people with Friedreich’s Ataxia.

Could you please help me to share your experiences in daily life activities, any physical or mental challegenges you are facing everyday and any treatment or support tools or device you are using.

Hearing about your experiences, journey and any suggestions would be greatly appreciated and welcomed.


Thank you very much!

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[estherderu]

Hi Raffles,

Suggest you go to the facebook page of the IOPTP (Int. Org of Paediatric Physio's) and ask the same.
AND maybe do the same at the OT's page....(they have lots of members and we have just started)
You will have to ask to become a member but after that, shoot

Wishing you fruitful research and better results Esther

Esther