Thanks Josephine,
I have found a doctor who will listen to me, but this does nothing to help. He is a surgeon of the foot/ankle and lives 1000km (600 miles) away.

Consider this one anecdote (I have hundreds). I had an inversion sprain to my right ankle and had five orthopaedic procedures. By August 2009 I could not walk and was in extreme pain, because the original complaint had not been dealt with; only made worse. Thankfully, by this time, I had a full understanding of anatomy, diagnoses, clinical indicators, etc. of the lower extremity.

I had a trapped peroneal nerve so I set about finding it. I eventually did using various data points. I published an essay titled, The Case for Entrapment Neuropathy of the Superficial Peroneal Nerve. I presented it to a foot/ankle orthopaedic surgeon with citations (text books, journals). Having some gained credibility with him, he injected the suspected entrapment site. There was a major positive indication.

I asked for surgical decompression, but he was reluctant, for a sixth time. Instead, he asked for a second opinion. I visited a Neurosurgeon, who told me that:
a) The injury is in my interest because I ride motorcycles and the injury prevents this
b) I am delusional for believing that my in-depth understanding of a particular area of medicine is normal
c) My partner (a nurse) is also delusional for thinking same
d) Surgery is not in my interest because some other guy, for which he has much respect, thinks that I am psychiatrically ill due to an episode (which has now been discovered to be drug poisoning (serotonin toxicity)).
e) When pressured, he finally admitted that I cannot have the pathology I think I do, because he has never heard of it.

This list goes on. Further, I have many similar stories. I cannot have these people determine what is in my interest, yet at the same time, I may need to seek medical assistance.

I've had the nerve decompressed and I am back to motorcycling (and mountain climbing, etc.), but I still have pretty bad evertor weakness. Hopefully will improve over time.

I need some method of resolving this contention between extreme incompetence of medical practitioners and access to the benefits of medical science. Thanks for your help