im sorry but i love how you seem to completely disregard the fact that we've all "been there, done that" and that your suggestions are of no help as they are no different from anything else we've already been told-which didn't work anyway. So I would ask that everyone would please stop giving the same suggestions to people with this condition. It is cruel in a way to make us think we may have a chance at life, only to find that there is no cure or treatment.

thanks but no thanks