dear phunphysio,

Sorry been away and didnīt see your question.
Raoul Engelbert is THE person I know of that knows a lot about the problems surrounding hypomobility.

I think this was his first article on the subject
Pediatric Generalized Joint Hypomobility and Musculoskeletal Complaints: A New Entity? Clinical, Biochemical, and Osseal Characteristics -- Engelbert et al. 113 (4): 714 -- Pediatrics

I would check him up, or had you already found him?


A neighbour family with father and sons all restricted in their hands, as you mention. It was not disabilitating them so they never had the disorder checked. As far as I know it wasnīt progressive.

Esther