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  1. #1
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    Re: Miserable Malalignment Syndrome?

    Hiya,

    No worries - you could say the surgeries have been an ordeal XD but rather that than the constant fear that suddenly my kneecap wouldn't be where it was supposed to be after every step.

    I can't remember if the subluxations were painful or not, in the beginning, but I know that by the time I required surgery, they didn't hurt - just made me fall over and yell in shock more than anything. Oddly enough, you never get used to your body popping things out of place at any given moment. Funny, that.

    I wonder if this new pain in your knees is them adjusting to the ankle braces? Your legs have possibly twisted to adjust to the pain you've been having, in an attempt to lessen the pain. Now that you have the ankle braces, your legs/knees are suffering for the adjustments they made because it's no longer necessary, and are in a more awkward position than they should be? All that is just my speculation, once again, so I'd just grill your physios for answers. It's what I do, anyway haha.

    I'm glad that you're getting answers at last - it makes things easier to deal with once you know what you're facing, I reckon.

    Thank you, and good luck to you too - I hope you get the answers to your remaining questions, and that you can get your pain under control.

    Y.


  2. #2
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    Re: Miserable Malalignment Syndrome?

    hey, i suffer from miserable malalignment syndrome. i'm 5'10 an very clumsy lol. i noticed this post on google, i've never met anyone else with the same problem before. felt like i was the only one. But thats only because out of all the specialists and 1 operation(that caused nerve damage) couldn't tell me. until seeing the same surgeon i saw 12 years ago. told me after a CT scan. also was told that having keyhole wasn't a very good idea..great too late now. taken 1 painful year off work and 2 more painful years to recover from. i find it hard to explain to my friends what it feels like, they usually tell me to quite moaning and shut up. I've been told there is no way to correct the problem. infact I've been told many things sooo much so that i give up. its messed up my career and my teenage years. sooo screw trying and i'm just putting up with pain and mountains of painkillers.



 
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