Hello,
I have EXACTLY the same problem for the past 3 1/2 years, except my pain is on the right side of my iliac crest. As the swollen area all along the iliac crest gets irritated, by ways of sitting (THE WORST) standing in one spot to long, walking to long, twisting, bending, basically any form of movement through out the day that utilizes the glutes; causes pain that radiates up my spinal erectors and my then my T6, T7 subluxate and cause all kinds of other pain isses. I have had all sorts of CT scans, SI Joint injection, 2 xmri's, bone scans, xrays, ultrasounds, colonoscopy, gatroscopy. The doctors have found nothing medically wrong with me. I have even seen a physiatrist.
SIJ dysfuction, bulging discs, nerve impingement, cancer, reumitoid disorders, tendonitis, bursitus have all been ruled out.
Findings:
1. Menguil cysts at the S1 S2: The neurosurgeon says this would not cause the pain I have and that they are very typical in people.
2. minor osteoarthritis L4 L5: Unlikely causing the pain becase my pain is 24/7 and unilateral
The only conculsion I can come to is a soft tissue injury that has never healed properly, which my doctor is starting to think is the problem. He says soft tissue damage does not show up on MRI, CT Scans, etc. I do recall one day being very stressed at work and I was sitting in my chair clenching my lower abs and upper gluste muscles. My back was not supported sitting at the edge of my chair. I remember feeling stress at the ride side iliac crest. As well, at that time I was running on my treadmill with weights in my hands crossing my hand over my body as I ran. Very shortly after this is when the excrusiating pain started. We focused on the middle back for a 1st year because the subluxation pain was so incredibly bad. My ribs would subluxate 5 minutes from walking out of my Chiro appt. When the ribs started staying in for longer is when I first noticed my lower back pain. By then I was seeing a physio and Massage Therapist for about 1 year. The pain is better, but still not near where I need it to be to work full time. I have had to quit my job do to the severe pain sitting causes me. I wear "Core Shorts" from my physio, everyday. It is the only thing that remotely helps me get through the day. Tylenol, Advil does nothing. T3's help a little. I generaly don't like to take loads of medication so I rely heavily on my core shorts and core physio exersices. I have recently joined yoga perscribed by my doctor. The problem I have is exercise seems to just aggrevate the injury. I'm an active person so the worst part about this is the limitations this mystery injury has caused me over the last 3.5 years.
ANY HELP to get better faster would be GREATLY APPRECIATED!!!!!!!! My physio, Chiro and doctors are all stumped!!!!! The pain is REAL. THE lump along the righ iliac crest is palpable. It's not in my head!!!!!! Pressing on the lump or swollen area doesn't hurt but if you play with it to much the pain will start about an hour later and it's excruciating. It's like palpation irritates the lump (whatever it is).
Thank you,
Jacqueline