Have a look on these sites on the internet for valuable help. I shall tell you in more detail later on.

www.dystonia.ie

www.dystonia-support4u.co.uk

www.sitestogo.biz/home/dystonia/6

www.brainaustralia.org.au/ AZ_of_Brain_Disorders/dystonia

www.dystonia-europe.org/europe/Article_Long_term_03.htm

brain.oupjournals.org/cgi/content/short/127/10/2360

These will be of help to you.