Delayed Milestone

[pradeepashu]

Hi,

My Daughter is 18 months old. She is not able to sit, stand or walk as of yet. Neck holding is 80%.
She is premie and had undergone Surgery for PDA when she was 2 months old. Now PDA is fine as per reports. Brain MRI is normal. We have been seeing Nuero Paedratics and their opinion is wait and watch the progress while also undergoing Occupational therapy on daily basis.

She is able to roll very well and lately started touching toys. She is also able to move backward in a walker. Uses her legs very well. She is has low weight as compared (now 7 KG) to her age but also she was born 1.25 KG. She also has a small skin lump (initially diagnosed as Spina Bifeda but later ruled out as MRI Brain was fine) at end of spine, which is OK as seen by multiple good Neuro Paedratics and General Paedratics. Her eye movement is fine and hearing is also fine (recognises parents and her name also).
She is able to communicate by making different kind of usual voices.

She otherwise looks to be a normal but lazy baby,

We are very worried about her delayed Milestone though the Occupational therapists say she will be ok by 3 yrs of age and would match a normal kid. She has been undergoing OT since she was 11 month old.

Can anyone please help us to find a possible reason or treatment for the delay, as of now no one is able to find any reason for same?

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[estherderu]

dear Pradeepashu,

Your questions are not easy to answer by others just like that.

The very best way to give you a good answer to all your questions would be to actually see your daughter in various positions and see how she moves.
That could be accomplished by sending me a video if that is possible. If you send it to me personally, no-one else will be able to see it unless you give permission of course. I would like to see her on her stomach, on her back, on her side, sitting and in her walker and I would like to see how she moves in various situations.

I am a member of the IOPTP's (International Organisation of Pediatric Physical Therapists Welcome to the World Confederation for Physical Therapy website | WCPT.org) Committe Practice and one of our main concerns is exchanging and spreading our knowledge.

Unless intensive assessments have been done by your occupational therapist, your paediatric physiotherapist and/or her medical specialists, no one can truly tell you what to expect for your daughter in the future.

If you are interested, you can email me:
[email protected]
for more information about me go to www.estherderu.com

[jimij747]

pradeepashu,

Sounds like you may need a second opinion. Could you find a private paediatric OT to do a through evaluation?

[estherderu]

dear pradeepashu,

I can recommend 2 very good websites for you

About skillsforaction.com | skillsforaction.com


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Esther