Ehlers-Danlos syndrome

[Alessia]

Hi everybody!
I've a patient recently diagnosed with EDS-type I. For now he only experienced with shoulders instability and joints laxity, expecially on his UL.
Are there any physical therapy treatment which can interfere with connective tissue degeneration? The best treatment is only preventing the joints instability? Physical exercises can be counterproductive?
Thank's for advices!

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[estherderu]

Dear alessia,
these website will give you some information
Ehlers-Danlos National Foundation - Home
Ehlers Danlos Support Group - Home Ehlers Danlos Syndrome - encyclopedia article about Ehlers Danlos Syndrome.

I can also recommend this article.
Pediatric Generalized Joint Hypermobility With and Without Musculoskeletal Complaints: A Localized or Systemic Disorder? -- Engelbert et al. 111 (3): e248 -- Pediatrics The first author has specialized in this field. He has published more.
good luck

esther

[Alessia]

Thank you Esther for that usefull references!