Long Term Neuro Conditions Service

[TaraMa]

I am trying to get together a business proposal for developing an interdisciplinary service for clients with long term neurological conditions.

Does anyone have any information to support such a service? I am familiar with the NSF and NICE guidelines, but I'm also looking for research into the management of long term conditions that could validate such a service.

Many thanks

Tara

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[112inky]

having peace of mind woking in interesting nature

[kimh195]

Hello........
you can choose ..........NSF
The NSF aims to transform the way health and social care services support people to live with long-term neurological conditions. Key themes are independent living, care planned around the needs and choices of the individual, easier, timely access to services and joint working across all agencies and disciplines involved. The principles of the NSF are also relevant to service development for other long-term conditions. This NSF is a key tool for delivering the government's strategy to support people with long-term conditions outlined in the White Paper Our health, our care, our say and the NHS Improvement Plan: Putting People at the Heart of Public Services. It applies to health and social services working with local agencies involved in supporting people to live independently, such as providers of transport, housing, employment, education, benefits and pensions.

[Fyzzio]

Hi,
I think it would be helpful if you could state, where you would like to start this service (UK?, NZ?) and whether you would like to provide the service for children or adults or both.
Your location comes up as NZ. Well, good luck. I work for such a service and we are dependant on ACC. Now, while that has it's own limitations :-), at least there is some money in the pipeline.
As to Neuro conditions not covered by ACC - good luck with finding the funds, because most patients in that category will not have the resources to pay for such a service. There are, however, heaps of organisations (e.g. Stroke Foundation, Muscular Dystrophy Association, Parkinson Society, etc..), which you could maybe contact to review needs for your service and guidelines for service delivery etc..

Generally, for guidelines, you could also check for the ICF health model/ framework.

Regards,
Fyzzio

[TaraMa]

Thank you for your input. Yes I am in NZ. I currently work for a DHB providing community rehab (short-term) for over 65s. However we find we are routinely getting re-referrals (usually after an inpatient admission) for clients who have a major neurological disability or progressive neurological disease and would like to have the ability to continually monitor them. However, i agree, funding is and will always be an issue. I am hopefull we can persuade the DHB to get on board by selling the idea that by regularly managing a client's disability/function as it progresses with age, we could hopefully prevent admissions and costly geriatrician follow up for these clients.

Tara