Hi , im sorry to hear the problems your relative is having , i am no doctor but have been suffering with a facial neuralgia called Glossopharyngeal much like TMJ.
its one of the most painfull things iv ever had , i have just been diagnosed with a prolapse disc also the pain between the two i cant describe , is the lady taking Topiramate as i know this can cause heavy weight loss ,

i have finally after 2 years being sent to see a Consultant Neurosurgeon Called Mr Wadley he is suppose to be one of the best in this area he works from Barts and The London Hospital Whitechapel London 0207 377 -7000 switchboard- fax 0207 377-7008 pass this on to her GP .
i have been sent here from another Neuroligist .

Maybe she could ask her Gp to refer her , i dont know where your from but its worth a try .
i went to the pain clinic when all the galpitin ect drugs that just make you feel rubbish didnt work they just tried more , then a Tens machine sorry to say just waiting for that appt was a waste of time , tell her to insist on being reffered.
Hope this can help in anyway atall .

P.S i must say though i have been on diclafenic morphine annd dyasipan for my back though drastic have had no ear pain either , but also haven't realy felt anything .

Additional Comment I forgot:
Quote Originally Posted by Sheilafj View Post
I've a relative in Dundee with severe trigeminal neuralgia. She struggles to speak and eat and is down to 7st (5ft 8in). She reacted very badly to anti-epilepsy medication and her GP has run out of painkillers to try. He is going to refer to the pain clinic (6 month wait). She is on her own with a disabled son (in his 30's). She's trying acupuncture with a Chinese practitioner (no success).

I'm sure there is a TMJ problem. She's had a lot of dental work as she was sure the pain was from her teeth. I've had the same problem myself which responded to Physio, acupuncture, medication and a mouth guard from the maxillo-facial dept.

I am a physio, but I live 200 miles away and don't have any contacts up there. Her inability to eat is a major health issue now. Not all physios have experience of maxillo-facial problems - can anyone help?

Sheila Johnston
Quote Originally Posted by loopygirl View Post
Hi , im sorry to hear the problems your relative is having , i am no doctor but have been suffering with a facial neuralgia called Glossopharyngeal much like TMJ.
its one of the most painfull things iv ever had , i have just been diagnosed with a prolapse disc also the pain between the two i cant describe , is the lady taking Topiramate as i know this can cause heavy weight loss ,

i have finally after 2 years being sent to see a Consultant Neurosurgeon Called Mr Wadley he is suppose to be one of the best in this area he works from Barts and The London Hospital Whitechapel London 0207 377 -7000 switchboard- fax 0207 377-7008 pass this on to her GP .
i have been sent here from another Neuroligist .

Maybe she could ask her Gp to refer her , i dont know where your from but its worth a try .
i went to the pain clinic when all the galpitin ect drugs that just make you feel rubbish didnt work they just tried more , then a Tens machine sorry to say just waiting for that appt was a waste of time , tell her to insist on being reffered.
Hope this can help in anyway atall .

P.S i must say though i have been on diclafenic morphine annd dyasipan for my back though drastic have had no ear pain either , but also haven't realy felt anything .
[email protected] email this lady i just found her details on here she specialises in this condition