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Additional Comment I forgot:
hi having worked for many years in postural management i would recommend an assessment by the Helping Hands company of a symmetrikit sleep system to minimize contracture development, these systems are modular, easy to apply and carer friendly, they will hold your patients in a midline position & control the trunk & head positions thus allowing better control of the limb girdles & hence positioning the limbs, the tone will reduce as the client relaxes. they have a good web site