Dear Antony
Thanks so much for your kind words and understanding
Up until 6 months ago I was fit and active and now I'm greatly debilitated by this syndrome
My comments were made out of sheer frustration, continuing pain and anxiety
Accordingly, I apologise for any hurt I may have caused you or your colleagues
I'm extremely worried that I will not be able to walk my daughter down the isle in October

I do understand the research you have explained to me in your post and appreciate your efforts
but I am desperate for any further help I can get and I trust you will see me on a professional basis should the need arise
Regards
Rick