Hey guys and hello Kath Webb!
I'm a 16 year old GIRL from Germany and I've been diagnosted with Hirayama 2-3 months ago.

It's 3 weeks after my surgery now and I'm trying to live with that stupid neck brace I've got to wear. Does anyone have advice for me? Showering and writing etc is pretty hard ( I still go to school). And of course I'm trying to deal with the fact that my hand will surely not be getting better....

I've had problems with my left hand and arm for about a year now. Earlier I only had problems in winter or when my hands were cold. But then my muscles startet to waste away and I could not correctly use my left hand anymore. I went to a lot of doctors and nobody knew..... ( I think you know what I mean )
I first had to wear a neck brace, than I had a surgery and now I've got to wear another neck brace for 3 months. After this I should be able to live without one and do sports like everyone else. My hand should not be getting worse anymore but the doctors don't think it will get better either . Nevertheless I've got to do a lot off physiotherapy to try to improve my strenght and hand coordination.

Kath Webb, you're not alone!

I am so happy I found this forum