Hirayama's Disease

[qwerta]

Hello all of you thankyou for sharing its the best help about Hirayama
Im supposed to be diagnosed with Hirayama at 2018 on France but actually they dont know what to do with me thats very stressful for me im just 23 years old i have some questions about it
1.do you have pain how where after how many years?
2.do you use medicinal or something so
3.what do you suggest me to do thankyou

[LawAlucard]

Hey Guys,
I'm a law student who was, diagnosed with Hirayama's Disease when I was 19. I'm 21 now, I wear a neck collar and I exercise frequently. Hirayama's Disease affected my life to a major extent, I was a basketball player and I used to play the guitar. Now all I can do is write or type, but that too is slowly being affected. I'm looking for other people with the same disease who have lived with this and have over come the drastic changes that it entails. I feel that considering the fact that there's no awareness about Hirayama's, we should have a community or at least a Facebook group wherein we can contact and share information along with the mental support and hope that it'll bring.

[qwerta]

Hey Guys,
I'm a law student who was, diagnosed with Hirayama's Disease when I was 19. I'm 21 now, I wear a neck collar and I exercise frequently. Hirayama's Disease affected my life to a major extent, I was a basketball player and I used to play the guitar. Now all I can do is write or type, but that too is slowly being affected. I'm looking for other people with the same disease who have lived with this and have over come the drastic changes that it entails. I feel that considering the fact that there's no awareness about Hirayama's, we should have a community or at least a Facebook group wherein we can contact and share information along with the mental support and hope that it'll bring.

Hey there i have symptoms as yours and same age and things u may contact me

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I want to share info with you thanks