Hi - I can appreciate that this is an old thread, but I am hoping that someone might be able to help. I am a health professional and mum to 4 little ones. My youngest son, 9months has been diagnosed with Left Congenital Clavicular Psueudoarthrosis yesterday, I have scoured the net and there just doesn't seem to be any support or information out there! I do understand that it is an extremely rare condition. My little one is not yet crawling and rolling and it is thought that he never might...., he is using the arm but as another member has said he is not weight bearing at all in a prone position. We have just been referred to specialists from every angle, paediatricians, cardiologists etc and the truth is at our local hospital they just can't give us any answers. His motor skills are delayed but cognitively he doesn't appear to be affected. We are just facing a whole series of tests and I would appreciate if anyone has got any stories or experiences that they are willing to share with us, as at the moment we feel that we have entered the world of the unknown! Is physio an option for these children or do we leave alone.....any advice would be extremely welcome!! Many thanks