I can recommend trying to find patient groups, the information on patient group sites can be very imformative.

Examples that I found easily are:
Arthrogryposis Multiplex Congenita | Doctor | Patient UK on it a little on therapeutic possibilities

Arthrogryposis Multiplex Congenital Support Group

Arthrogryposis Multiplex Congenita

Hope you will find the information you are looking for.

kind regards esther