hi browntrout - DrDamien has given you some good advice.
I was reading your posts and i couldn't help but wonder why the PTs have given up so easily on you - it may actually be because you have nerve damage. They might have tried to explain this to you but you might not have understood or they might not have been clear to you.
You can do the program as suggested by DrDamien and it will help if that is what your problem is - DrDamien would be the first to acknowledge that we are trying to help you without actually being able to see you.
My thoughts are in addition (not in opposition) to his...
I think your statement of saying that no one truly understands the nature of your problem is spot on. I think what you are lacking is a good diagnosis of the problem. Now it may be as simple as weakness that needs to be addressed but i think it is more muiltifactorial than that.
It would seem to me that your nerves are compromised somehow and that is causing all sorts of problems in your body. Because of the nerves involved, it would seem that your adductors or your VMO is the problem.
Your iliopsoas might be overactive and trying to substitute for your adductors. It is a stubborn muscle but it will yield if you take away the reason why it is overactive in the first place
My main impression reading your posts are that your back is affecting the nerves in your back and you probably lack the control of the back following the surgeries and falls. The other thing is that you haven't actually told us why you needed all those surgeries (esp the first one). Was there an accident? What were the other 3 surgeries if 3 of them were fusions?
Also, it is well known/documentated that fusion of a lumbar level will almost certainly lead to failure of discs of the joints above and below the fusion. Since 1990 is over 20 years ago, i suspect your spine isn't in fantastic shape. It is likely that excessive bone growth or excessive movement due to disc degeneration is causing issues.
Also, your MD is tests with electrical devices but you don't mention if they were EMG tests. They are like zaps to your muscles and measure your nerves and their conduction velocities etc. You said that your muscles didn't respond to the tests but did that mean the tests showed nothing or that the muscles were gone and not responding like they should (a positive test).
Thanks!







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