Suspected Chronic Levator Scapulae Syndrome

[neurospast]

Your problem is definetily related to the nervous system but not necessarily the central nervous system. Some questions: Have they done an MRI or other imaging of the neck and Thoracic spine? Nerve conduction studies: Which nerves were involved?
I give you here an hypothesis:
In case you would have a long thoracic nerve injury, a complete one, You would get severe winging of the Scapula. Most likely you would not feel any pain from this (unlike other nerves which have a bigger distribution e.g. the radial nerve). The winging would be caused because the Serratus Anterior (the muscle innervated by the Long Thoracic nerve) is extremely important for stabilisation of the shoulder girdle. As a result other muscles as the upper traps, levator scapula and so on would try frantically to stabilise the girdle and forming active triggerpoints which could cause spasms, twitching and so on.
Look, I know this is a wild guess but you have nothing to lose to look into this. Also to remember that the Long Thoracic nerve is a very superficial nerve at the neck and can therefor easily be damaged without you having noticed.
Wild guess...