Regaining Balance

[gcoe]

Hi Mancc11

If the main problems are comimg from the crebellum then yes balance is a key feature of problems and you may also be experencing some problems coordinating your movement when you walk so movements may become clumsy and there may be a shaking movemnt when you move. There usually isn't true weakness as other parts of the brain tend to produce strong movements. you may of course be weak but then that mayindicate other parts of the brain may be invoved.

You will find physios who work with nervous system diseaseswill be reluctant to prescribe exercise when they have'nt properly assessed your situation -so that is a big ask over the internet. However we may be able to give you some general points to work on if you give us some more info about how you experience moving.

May I ask what the diesease is that you have? And could you describe in detail what happens when you try to walk?

[manc11]

the disease is called langerhans histiocytosis. I have weakness because I was on tablets that reduced tone in my legs but at the same time weakened the muscles, but I am currently not taking this medication any more. When I stand up to walk it's as if I have no ability to walk by myself, I can take two steps without holding on to anything but I can't do this all the time, sometimes when I'm walking with crutches I get a feeling that I'm going to fall (usually when I'm in a wide area with nothing to hold on to or if there are a lot of people walking around me) this disease only effects my legs, the rest of my body works normally, the main question I have is will I ever walk again properly. Can anybody be thought to walk again no matter what their history is?