Hirayama's Disease

[canada]

Hey guys

I was diagnosed with monomelic amyotrophy aka. Hirayama's disease in 2003 and have now been going for 5 years or so. Unfortunately it affects both my hands, left much worse than the right, so that I also cannot play video games anymore hahah. Typing is manageable, but I find small everyday tasks a pain: ie. doing up buttons, shoe laces - notice that?

The thing that bothers me the most, besides the handshake like you pointed out, is that I can't play hockey or golf with my friends anymore... what I would give to for some sports again.

I've just recently been in touch with some doctor's at the Mayo Clinic in the US and hopefully will fly down there soon to get re-evaluated. I've read a few reports about mis-diagnosis and wondered if I may be lucky enough as well.

As to the post above about the surgery - how are you doing now? What did they do?

[Confused/Afraid]

Hello Everyone,
My name is vicky and i am a transgender female,my life has been very difficult as it is. I struggled to get were I was for it all to come crashing down on me.
I was diagnosed with Hirayamas Disease and have all the symptoms.It started with my right arm and now my left but this started when i was 30 not in my teens nor my 20`s like most. I`m 36 now. Is that normal, also they say it happens most to Asians or Japaneese or one`s from India I am latin, is that normal. I was a cosmetologist and a Dental assistant for about 20 years or so, my right is totally non functionable and my left is now getting weaker.I had applied for Disability cuz I can`t do much any more and I have been denied twice. I am now going in front of a judge for an appeal. What I want to know is if there are any of you who have applied for disability, or is there any one who is recieving disability. Should I just stop trying. There is no one out there who will hire some one who can not use there hands and arms. I need to know that there is hope for me and if there is any one who would help me thank you all for your support.