Hirayama's Disease

[wastingaway]

also, i think above you asked if physical therapy was a good idea. ive been going to it every week for a little over a year now. while mosts of the stuff you can do on your own, they DO help you come up with exercises to target certain hand muscles whichi s nice because i would not think of some of the things myself. i dont know, ive kind of just adapted to the condtion. even though my finger strength is weak i can still do MOST of the things i use to..i just do them a little different..for instance i shift goofy on my bike because i cant use my finger strength to pull the clutch lever in. once it is in though i can hold it with my finger strength, its weird actually now that i think about it. id say if u still have enough strength to lift weights you should. i use to love working out. i was never a huge guy, but my friend and i lifted every day trying to be lol. i stopped lifting though after a while because i was afraid id hurt myself. i dont really trust my hands like i use to haha

[josephblayil]

Thanks guys for the quick resposes.

So that means I have to be very careful during winter. My condition is not very bad now. But now i'm afraid of the winter here. Its my first year in US. The condition in India is entirely different. i will try to stay away from cold and use glouses.

Also if you can forward me those 2 missed out links that will be great. I joined the forum last day only.

But for the last 4-5 years i was feeling isolated kindof i'm the only one with his desease. Now that i found you guys i'm happy. that we can atleast share the Best practises and get know any updates on this in medicine.

Also one question. My understanding is that this deasese will stop @22-23 age and after that muscles wont wasten again. Is that correct? Anyone who has this desease for long time had the wastening got stopped atleast stable?

Wering a cervical collar will help only if you do that from 18-22. when you have the wastening goes on right? now that we dont need to wear that right?

Thanks again for your time.
Hope we will be able to see atleast one among us get rid of this and that will be the happiest moment for me.

Thank You
joseph

[josephblayil]

Hi guys,

Did any of you guys used heating pads or anything to increase blood circulation and did it help?

I'm planning buy one as winter is approaching.

Please advice

Thank You