Hi Jacqui,
I am sorry that you are in so much pain. Let's just get through it very slowly and find a good physio to give you a diagnosis more specific that ITBS (BTW syndrome just means a collection of symptoms that are associated - it doesn't actually tell you what is wrong!!)
I gave you those websites because these people might know someone in your area who you can go to see.
For my question 4 above, you didn't tell me about the effort - i think you just told me that it hurt near the patella. Pain is not important in this test. It is the effort required to lift your leg up 12inches on one side compared to the effort on the "good" side.
Is there any other way you can stop aggravating your knee pain? Have you tried massaging your bottom/gluts/piriformis? Get your mum or dad to do that for you lying on your side - it might help the pain.
Do you have any pins and needles or numbness anywhere at all?
Thanks






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