Hirayama's Disease

[musman100]

Hi to all I'm musman.. i found this great forum in sites and i knew this is a right place for me.

[billshakes]

Hello I'm a 36yr old English guy based in Barcelona and it looks as though I have Hirayama's disease which is causing wasting in my left hand. The official diagnosis is still a few months away but I've had MRI and Electromyography (EMG) tests and symptoms suggest this disease.

Just wondering if anyone has some advice on physical therapy that I can do myself to improve general mobility of the hand? What part of my hand should I exercise and how?

As far as I understand it from my Spanish health care, with a typical MRI result ie there is nothing out of the ordinary, there is no treatment or solution so if anyone knows otherwise then please let me know. I would also like to know what sports are considered ok to do as under doctors advice I have given up anything that strains the neck e.g. tennis, yoga and swimming (front) but am still running.

Also wondering to what degree the wasting could continue, it's been gradually getting worse over a 2 year period and hasn't reached a plateau yet but I'm obviously hoping it will and stop at the hand... Anyone else with experience of the condition I welcome your input be it positive or not, how far has it progressed with you and where.

Good luck all