Hi everyone!
Im 26 and diagnosed since I was 17.
I have never thought about searching a forum like that, when I saw it for the first time (this week) I was thrilled that there are people like me with the same disease.
The Hirayama got my left arm and its getting pretty stable around the last years.
I have read most of the posts in this forum and I think that it's wonderful that we are sharing our problems in life by using the web, I find peace in knowing that.
During my reading in this forum I notice that (maybe) no one wrote about how he/she is sharing his private "drawback", and I mean how you handle your life's with flaw?
That issue bothered me ever since and I still not over it.
It's hard for me to talk about it with me girlfriend when she is asking question, my best friends don’t really know about that exact disease…
It's been a Hell.. but now im pleased, I found you!
I want to know the people here better and to make this forum more alive, if possible
I will post soon more about myself, but for now that will do.
Thanks for the support!