Hi everyone I would like to talk to you about Hirayma's Disease with you. My doctor says shes 90% sure I have Hirayama's Disease but they can't find anything in my MRI'S every thing is normal. And I have to wear a neck brace. I'm 17 years old and it started when I was 16 so it's been going on for 1-1/2 years. I have weakness in my right hand and it shakes and I have muscle wasting. It is also hard for me to write with a pencil and use my hand. And I was wondering if I can talk to you guys about your experience with this disease because I don't know anyone that has it. If you would like to email me at [email protected] or on this website ( but I really don't know how to use this site) I would really appreciate it. Thanks.