Hi Susan!
Im glad to tell you that you have reached the right place.
Im diagnosed with that desease since age 17.
i have never wore a neck brace, nobody can assure me that it will stop the progress of the desease.

please read my post, its right above yours. i was a sporty guy myself but you have to understand that you must focus on your boys mind and spirit. you get to live with it, you study yoursef everyday and the body and mind are adapting automaticlly to the new state.
im 26 and over it, you can say im beyond my peak. from now on its atable and static.
i can help, if you nead help getting through those years im willing to help out.

i sent you private massage with my skype info, contact me if you like.
gripit