Hirayama's Disease

[qwerta]

Hey Guys,
I'm a law student who was, diagnosed with Hirayama's Disease when I was 19. I'm 21 now, I wear a neck collar and I exercise frequently. Hirayama's Disease affected my life to a major extent, I was a basketball player and I used to play the guitar. Now all I can do is write or type, but that too is slowly being affected. I'm looking for other people with the same disease who have lived with this and have over come the drastic changes that it entails. I feel that considering the fact that there's no awareness about Hirayama's, we should have a community or at least a Facebook group wherein we can contact and share information along with the mental support and hope that it'll bring.

Hey there i have symptoms as yours and same age and things u may contact me

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I want to share info with you thanks